my life with Emotional intensity disorder
WARNING may trigger!!!
I have an illness called borderline personality disorder, but i don't like to call it that. I prefer the name that my care co-ordinator told me when i was first diagnosed just over a year ago. This name is emotional intensity disorder. I believe that this describes the illness better than BPD.
BPD doesn't really tell you anything about the illness, other then that its a personality disorder. What does it mean to be borderline anyway? Borderline what?
EID isn't a perfect name either, but for me it is a lot better then all the other names out there.
Why am i referring to this disorder as an illness not a disorder? For me calling it an illness makes it feel more manageable, its like its no different to having any of the physical health problems. Its like its no different to a broken leg. The difference being that it is something that is wrong with my brain, some of my brain got wired a bit funny whilst i was growing up. This part of my brain is the part that regulates my emotions. With hard work and determination i hope i can undo this wiring and rewire it in a way which means that i can function better. I can teach myself ways in which i can deal with situations in different ways which means that my emotions wont be as extreme as they are at the moment.
People i tell about this illness seem to automatically think that i am schizophrenic, that i have more than one personality and they joke about it. This is not the case at all. So i am about to write this so that you can understand what it is really like to suffer from this illness. It's not pretty... in fact it's pretty ugly. All i ask is that you don't judge me for it. Believe me when i say that i am changing and that i don't like the negative parts of this any more than any of you reading this will.
The way EID was first described to me was that i was a bit like a radio, i have put some music on and turned the music right up, it's to loud so i try to turn it down, and i can't its stuck. I have the same emotions as someone without the illness but all my emotions are to the extreme.
However sometimes the dial is stuck and i can't turn the music on, whatever i do it just wont move, at these times i feel nothing, again this is to the extreme.
Everything is Black and white, there is no grey. This goes with everything, nothing is excluded from this.
The people around me never know how i am going to act, how i will respond to the things they say. Its like they are treading on eggshells.
If they say something that makes me angry i could go two ways. If they are lucky i will keep it all bottled up, i wont let them know the anger that is inside me. I go along with whatever they want. But that anger can get so strong that it is just fighting to get out. If i am keeping it bottled up then the only way out for that anger is to destroy something. That is normally myself, i will talk about this later. The other way i could deal with the anger is to take it out on the person i am angry with. I will shout, throw things i may start hurting myself as its the only way in which i can show how angry i am feeling. I ALWAYS regret this, i realise what i have done and i normally spiral into a deep depression. If my anger is really bad i will lash out Though this has only happened with my husband, mum and brother to my knowledge (apart from one time that i threw a chair and lashed out at a girl that had been bullying me for 5 years). I have been known to hit, kick, bite and dig nails into them. The scary part of this is that by the time i have reached that level of anger i have started to dissociate which means that i can have no memory of doing it after. When i realise what i have done i end up beating myself up for ages after. I hate myself so much for the things i do, the way i treat the people i love most.
I can go from really loving the person, to the point of idealization to devaluing them, hating them. I can't see a single nice thing about them and i don't want to be anywhere near to them and i will do anything to make sure i don't have to talk to them, at the same time i am begging them not to leave me on my own, i need them, i can't cope on my own. If they leave i feel abandoned and i hate them more. Its the black and white thing again.
Though its really hard for those around me seeing the way i act, being on the receiving end of the nasty things that i can do and say its nothing compared to the pain i am in. Not only do i do these things due to the strong intensity of my emotions, but i also have to cope with all the feelings after i realise what i have done. The hate the shame i end up so depressed. It seems like there is nothing in this world that i can do right, it seems like i ruin everything for everyone.
When i am depressed i can cry for hours, i feel suicidal, thoughts running through my head of ways i could do it. I think of self harm, ways i could do it but hide it from the world. I don't want people to know how i am feeling cus i don't want to hurt them. At the same time i would do anything to get someone to listen to what i am not saying, see the pain i am in and reach out and help me.
I find i can't ask for help, my emotions just get stronger and stronger my head feels like it is about to burst. So much stuff running through my head. All negative of course. My anxiety levels rise, they get higher and higher. I know i have two choices have a panic attack or cut. Option one means hours of feeling like i am dying. I feel sick, i can't breath properly. Sometimes i stop breathing till i can no longer hold it in, it feels like not breathing is the only control i have over my body. If i am breathing its normally so fast that i end up extremely dizzy, my chest is tight, my mouth is dry. I am crying and i can't stop the tears flooding out. When things get really bad i feel paralysed. I can't move a single muscle in my body, everything is tense and the pain is extreme. Not being able to move anything makes me panic more. This can last for hours. When its finally over your exhausted, you can do nothing but cry if your lucky. If not you feel numb, there are no feelings you are totally dissociated, you can't talk, you can hear people talking to you, but that feels a long way off. Its like you are not really there, you are looking from above at someone lying there totally helpless.
Option two seems so much better at the time. There is immediate release. All those thoughts and feelings float away. You are suddenly so much calmer. Head empty. Its all over in seconds.
But that doesn't last. Soon the feelings of guilt set in, you regret what you have done to your body. The pain that wasn't really there when you were cutting due to the dissociation suddenly hits you and reality sets in. You know someone is going to find out, they always do. You know that when that person finds out they will be so hurt by what you have done. And you end up depressed again. You can end up in a ridiculous cycle if you don't get out and learn skills with which to stop this from happening. Cutting is not the only way of hurting myself though. There are many forms. These range from the minor things, hitting, hair pulling, biting, pinching to the more major things of breaking bones, dislocating my joints (not hard since i can dislocate very easily due to the hypermobility syndrome) cutting, burning and friction burning. There are other forms i have used as well. I am not proud of what i do and i am trying my hardest to put this behind me. I would not recommend it to anyone.
This illness is not just limited to negative emotions, but can affect my positive emotions too meaning that positive emotions can very quickly become negative. When i am happy i have to be very careful to not get too hyper. When i get over excited i can get out of control. I have been known to tell people i can fly, run into busy roads, stood on top of a table (thankfully at home) wearing not much, dancing provocatively, and then went on to use a lamp stand to pole dance. On all of these occasions i was so hyper that i have no memories of them... well i have some of the table dancing and pole dancing, but i am unsure of whether this is planted memories from those that saw it telling me.
When i am manic i can also turn pretty nasty. I don't care about anyone around me. I will hurt them and think that i am the only one in the world that matters. I feel like i am the queen of the world. Nothing can bring me down.
As i have previously mentioned though, there are times when the sound control on my radio is stuck off. These are times when i am dissociated, i feel empty, i look at everything around me as if through someone else's eyes. Its pretty scary. Sometimes i can't cope with the feelings of emptiness so i self harm to try and feel something, anything. I don't care what, i just want to feel alive.
In these times of extreme emptiness i push everyone around me away. I refuse to talk to anyone. I can't talk to anyone, i seem to loose the ability. This hurts those around me. They think it is their fault, they think they have done something to hurt me and that i hate them. This could not be further from the truth. I want them to be near me so bad, but at the same time i just can't cope with that.
This is really hard for those around me as they never know where they stand with me or how i will act towards them. I am just continually hurting them. They try their hardest to help. To rationalise with me, but i wont listen. I will ignore what they are saying, believing that only what i am feeling is fact. I lose all perception of truth. I don't care about what people have to say
One of the major issues i have with my EID is the fear of being abandoned. I am always thinking that if my husband goes out for the evening that he will realise that he is better off without me and that he wont return. I am always sure that people will soon realise what i am like and they will abandon me. I will go to extreme lengths to stop people from going, i will clasp myself onto them and not let them go, i will stand in front of doors and not let them past unless they fight their way past. Though this just seems to reinforce the belief that they are indeed abandoning me. I will say things and treat people in such a way that i am constantly pushing them away from me so when they do go i can say 'i told you so'.
My head is constantly playing games with me and others around me. I get paranoid about the abandonment. If one person goes away, even if its just for a holiday, my mind tells me otherwise. It tells me that its all about me. They want to get away from me because they could cope no longer.
Someone leaving (like my care co-ordinator) is like the end of the world for me and it causes serious depression. I can't cope at all and my whole world seems to fall apart. I try to find ways to hate the person to make it easier for their going, but sometimes that is just not possible. They just seem to perfect and i just can't seem to find a thing that i can hate them over. This can often be because i idealize the person. In my eyes they just can't do any wrong. I know rationally this is not right as she is a sinner like myself and only christ Jesus has ever been perfect. But i just can't think rationally like that. I find it very hard to trust others and to make friends, so when i find someone that i feel i can trust i try and grasp onto them with all my might, but this often scares them away. So i can end up wanting the mental health workers to be my friends. When i don't feel like i have been treated very well by a worker i can be extra distraught because of this. I see them more as friends then i do workers. They tend to be safe people. People that you believe wont leave you because of the things you say, because of what you do, how you act etc. It feels like they will always be there for you. Though this means that if you do try and phone to get through and you can't you start believing its because they hate you rather then because they are working.
I also want to be perfect in everything i do and i find it very hard if i feel i have failed in anyway. But nothing i ever do is good enough, so i am constantly beating myself up for it. I believe that if i was better then people would like me more and that they would not leave me, that i would have more friends that actually cared about me and tried to understand what i am going through.
Having this illness can also have some ups too. It means that i can be very caring and loving, i can empathise with people that bit easier and i have a larger understanding of the world around me and those in it. It has taught me so much and has given me some great friends that i would have never met had i not had this illness. Though i would have preferred to have met them all for other reasons!!!
There is also never a boring moment in my life whether good or bad due to my colourful personality and my moods. Though it isn't all positive, the good times are great. When i am happy i am really happy which is just fantastic (when it doesn't lead to mania) and this has left some amazing memorise of good times!
It helps me to be a good listener and able to help others in the same or similar situations that i have been through. I think it is so much better being able to talk to someone who really knows what your going through and i am happy to be able to be one of those people.
I know i haven't really written to much positive stuff... but i find it really hard to say good things about myself and what i have written has been a huge stuggle.
If you have read all this, thank you. You deserve a gold medal.
I really hope that this doesn't make you view me in a bad/negative way. I am still the same person as i was before you read this... but i hope that it gives you an insight to what it is like to live with this illness.



15 Comments:
I found this blog by searching for "emotional intensity" on google. I completely understand what its like to live this way. I was diagnosed with borderline personality disorder after years of being treated with antidepressants that didn't really work so well. My life has always been characterized by a lot of emotional pain, fear of abandonment, fear of not being good enough, etc. It all came to a head after a huge breakup, compounded with a move across the country and new job. After trying several drugs I was put on Seroquel and it really made a huge difference, along with cognitive behavioral therapy. I was able to function and actually use logic to counter the overwhelming emotions. But if I skipped a dose, I was a mess. Then I started having really bad side effects, like my heart racing, and "sleep hangovers." So last month they tapered me off the meds. I was doing ok, I guess, until the stuff finally left my body. Now I am feeling the intense, crippling emotions again, and I don't know what to do. I have several major life decisions I wanted to make very soon, but I find myself crippled by horrible fear that no matter what decision I make, it will be the wrong one, and I will lose everything.
I don't know why I felt the need to comment, I just identify very strongly with your post, and understand what its like to suffer this way.
My name is Ngina...i am thirty and live in Kenya...i am one of the fortunate Kenyan's who can afford healthcare and excellent therapy...for very many years i always thought that there was something very wrong with me...and my family could never understand why i acted the way i did...recently i got into therapy to deal with my past and my mothers death...my relationship with her was very complicated and her illness took a large toll on both me and my siblings...i want to thank you for your blog...when ever i explain to people about my EID they just dont understand and im sure that some think i am making it up...i usually tell them my brain which is my computor motherboard was wired wrong and now i have to re wire it all...but its not a job for one day but many years to come..and it kind of like being an alcoholic...it something that you will have forever...and its just you learning how to handle it with your STEPPS...you blog has made feel not soo alone in this crazy illness that we share...i want to congratulate you for the courage it takes to write about your inner most workings and helping some like me many miles away from where you are...thank you again...and congratulations on your marriage..may you be blessed with a blessed, wonderful and beautiful life together...
Ngina
Thank you for your blog. It helps reinforce I am not alone.
I also found this blog by searching google for "emotional intensity" I was diagnosed with BPD about 4 years ago. Although I do not conform today to what people would expect, I at one time in my life met every single criteria. Anti-depressants always made it worse, so I quit trying. Putting up the blocks are so hard, trying to get my husband to understand is impossible, I'm lucky he loves me. I still have much rewiring to do do, but I think if I'd had a good therapist I might be in a better place than I am now trying to do it all on my own. But I fear them, fear they're always out to hurt me one way or another, they've caused me so much pain in the past. In fact I've had one that now in my home town the Dr.s laugh at the mention of his name. I find that I've noticed I'm almost fake sometimes, have hid so much of myself from others because they don't like it, and it makes it so much harder. It sometimes feels so unfair that I just can't be me and accepted as such.
I guess the real reason I'm writing is that I'm so glad you wrote. It was like reading my own story. I want you to know as well, you are not alone. You really are wonderful, special, important, loved, liked, cared for, needed, beautiful, intelligent, caring, and wanted. I know it's hard to remember that, I seem to forget daily. But you ARE!!
Also I found it interesting that you have hypermobility syndrome as well. I don't have it to the point of being double jointed or anything, but i have been diagnosed and it has caused it's own handful of issues. It makes me wonder if it's just a "coincidence" or if maybe there's somehow a real connection... it's a thought especially since so little is known about our disorder. What I do know is our experiences are nearly identical in nature. I will bookmark this page, if you'd like to talk more leave a comment or something for me to see and I will get you my info, create an account or something.
God Bless
hi I that this is very true what you write I have EID and I hate it if it helps I am doing the STEPPS \PROGRAM and it has taught me so much its amazing it might be good for you too
Hi I think that what you say is true I have EID I hate it I go from one extreme to another being hyper to really low to the extent that I cant and wont live anymore but the good news is that I am on the STEPPS PROGRAME and it has taught me so much its amazing if you still have a care coordinator ask if she knows anything abought it and if you can try the programe you may learn so much from it like I have it teaches you so much
I also found this blog by searching "emotional intensity disorder" on Google. I have recently been diagnosed with IED (2 weeks ago Feb 2011). 5 years previous I was diagnosed with Bipolar, I am the tender age of 47 lol.I was 26 when my pressure cooker exploded, so to speak. After numerous psyc-hospital admissions, ECT,self medication (alcohol)various antidepressants, antipsychotics,sedatives, mood stabilizers, self harm etc etc here I am! I totally idenfity with what you have written and I thank you for taking the time to write it. I am due to start the STTEPPS programme very soon and am apprehensive but hey, things can only get better right? What I found most comforting is that "it's not just me" this really does exist. Just to add I also have hyper mobility syndrome!! I am also wondering is this just ANOTHER coincidence??
Once again many thanks for being brave enough to share your story xx
my partner came across this blog a few days ago as she was told she had this illness after i read this artical i now see the simarlarities between what you were writing and what my partner was doing, this has made me understand better why she acts the way she does and we are both going to work a way to try and beat it,
although there is no none cure we take each day as it comes and i always let her know im here and she is loved by those around her
Hi- I read your post after searching for Emotional intensity disorder. Yesterday my counsler told me that she thinks I may have it. I am going to be starting a program called STEPPS very soon to help me cope with my emotional intensity. I read every word of your blog and it felt as though I was the one writting it. I tend to eat to deal with my emotions and now I have 100 extra lbs that I have to lose. (the things we do to torture our selves, right?) I also suffer from Fibromyalgia syndrome, sciatica, severe depression, Chronic fatigue syndrom, migranes, blah blah... the list goes on. I am a big mess. I am a divorced single mother of a 5 year old little girl, and I want a better life for her and for myself. I really hope this program works. Best of luck to you, and thank you for your blog. It helps me see myself in a different light and helps me to know I'm not alone.
Hi, I have been diagnosed with BPD or as they now like to call it Emotional Intensity Disorder, I was diagnosed roughly 3yrs ago, no one really explained what it was and all my treatment consisted of was pills pills and more pills, I am also a self harmer and it seems in my situation I've not been able to get help because I self harm therefore they feel if they start digging into me I'm goin to self harm or commit suicide which I have tried on quite a few occasions obviously failing which makes me feel even more of a failure, I can't even get that right! My husband does not understand my illness or self harming nor does he want to, he just thinks I'm like I am cos I'm nasty and selfish. It doesn't matter how much I explain there's something wrong with my brain it doesn't make any difference, I feel I have to justify myself constantly and it sounds like I'm using my mental illness as an excuse, which couldn't be further from the truth, I burn or cut myself when I feel I'm losing control or when I'm so angry and feel no one is understanding me, I didn't ask for this illness yet am blamed and punished for it, so I ask myself who is the selfish one???? Me who hurts so much they cannot cope anymore with life and wants to end it or the people who expect me to jus carry on with no idea of the pain I'm in!!!!! I'm lost in a spiral of can't help cos u self harm therefore your not mentally strong enough for councilling. I dont want to be here any more I've had enough of pretending and being OK. For me I feel there is no hope or help, my brain is screwed up a big thanks to my parents and my upbringing for that yet they walk around fine and I'm the one that can't see any light at the end of the tunnel, I've put my children through hell with my illness and am scared it's going to rui. Them which ever choice I make...so I've just come out of hosp again after another failed attempt ready to plan the next one,but it's not what I truly want , I think all I really want is to be loved and not judged on an illness I have no say over.
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Thank you very much for writing this blog. I can identify with many of the feelings and behaviors you described and it's nice to have someone else say what feels so indescribable sometimes.
Today I noticed how fast the intensity of these emotions shifted and it scared me. I'm working with an amazing therapist who is giving me some great tools to help me dissect the process of thought-feeling-behavior. Unfortunately, I find the release from the intense emotional pain you described from cutting or bruising myself by punching. It also helps to restrict my eating as much as possible, exercise (not for the right reasons, though) and do a lot of body checking in the mirror. If you who are reading have a similar issue you know how these things seem like the only way to turn the valve to release that incredible built-up pressure from inside. It feels like my body will just starting running around frantically and eventually my head will explode from all the pain. Have you ever seen "Witches"? It's not a pretty comparison but when the people turn into mice...that's sort of what I visualize will happen to me when I'm in that intensive emotional pain. :) Kind of a funny picture :)
Anyway, the Lord has a plan for all of us and if we look hard enough we can all have label of some sort. The truth is we are beautifully designed and are treasured by the One who created the Heavens and the Earth. And just b/c we struggle with things doesn't mean we aren't looked after. My goal is to learn how to use what I'm learning to bring glory to God and to help others. And the good news is He will use it all .... the good, bad and ugly as he tells us in Romans 8:28 "All things work together for good for those who love Him according to His purpose in Christ Jesus."
It's not too late for us, no matter how screwed up we feel. Good luck friends.
My GF has EID. I hadn't been coping very well with this and we have had a lot of fights, but reading this has really opened my eyes. Thankyou so much.
Unfortunately we're in Australia and dont have a STEPPS program. Please say a prayer for us...we need it.
God bless you and keep you healthy and happy.
Thank you for this blog.
Im still trying to understand my EID illness, as I have only really known about it for a couple of years, and not researched it until a few months ago. It would be nice to have someone in your life that supports you, I have no-one.. not even my boyfriend anymore.
Hi. I have been suffering mood swings my whole life. I have a lot of guilt I carry for not being able to control the extremes. Mine isnt as bad as what i have read. I have never hurt myself and i havent experienced the over hyper. I have experienced years of crippling panic attacks in the past though and i feel your pain. Ive finally over come that time in my life. the mood swings though are very aparent. when im happy and when im down I am really really down and people say whats wrong tell me and then get upset when i cant explai like im keeping something from them. happens more when im stressed. I get enraged like that and feel like im going to combust. Somedays are so surreal, the feeling of peace.. and then sometimes I feel absolutely nothing. ?? thats mostly what I feel guilty about. My riends have gently told me i might need to look up mood disorders. I put in some key words and shazam here I am. STEPPS? going to look into it. If it saves my relationships, my quality of life and actually allows my friends, I am so there. I keep everyone at such a long distance aw if i could find steadiness id be so very happy. Thankyou for sharing your story it does make a big difference when you know you are not alone and there are steps to overcome. Keep fighting.
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